Let’s Talk Religion (Gulp)!

Bet you didn’t see that one coming!  The absolute touchiest of all the touchy subjects! The Big One! The subject we just assume no one will talk about except in rhetoric and in popular language.

I’ve already disclosed that I’m a “gasp” atheist and I make no apologies for my beliefs and By The Way, I’m not a monster! Imagine!  I don’t follow a Book that kinda, sorta, maybe gives me moral guidelines depending on the time in history that is.  Some of that shit that is written in there is messed up!  Men can’t cut their hair or their beards? Women must cover their hair in public? You can own slaves? You can commit adultery if it’s to have kids?  And the list goes on and on.  Being a history major, religion has always been at the forefront of  history, justifying power, theft, slavery and murder.  But times have changed (kinda) and people for the most part realize that religion is really what you make of it (mostly).  Hopefully you use it in your life to be kind, generous and sometimes even forgiving.  If an organized, political organization makes you feel better and gets you through hard times, Praise the Lord and Start A Prayer Circle.  HOWEVER , this is not how I roll so don’t try to impose it on me.

I don’t need that threat hanging over my head of eternal damnation if I don’t follow the rules of whatever religious organization.  It’s like, “If you’re good in this life, you’ll be rewarded in the next.” The ultimate capitalist ploy! How about being kind just to be kind? How about paying it forward without any expectations of being rewarded?  Some philanthropists will give to charity just to give without their names being attached to the building (but they do get a massive tax break though dammit!)

Please don’t assume that everyone who is dying gets close to God! We will all follow whatever beliefs make US feel better not what is prescribed by society.  My take, as you probably know is to leave behind a lasting legacy of kindness, laughter and crafts of course!  When I’m gone, all I want is to be remembered helping people cope (with his blog I hope), making people laugh (even though that is BT’s job obviously) and sharing life lessons!

So I think you can see on how I stand on this subject.  But seriously! Messed up shit happened in the name of religion and keeps happening!!!! Seriously someone’s gotta talk to these people! OK I’ve said my peace and I don’t think I offended anyone.  And if I did,? Suck it!

And now ladies and gentlemen, it’s BT story time!  I know that you forward to that because let’s face it you can’t make that shit up!  And I know that it basically has nothing to do with my cancer but …. let’s face it! It’s hilarious and when I’m a little down, I just think of one of the stories and I’m in a good mood!  Thanks Babe!

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It’s January in Toronto and the World Junior Games are on and we have tickets to like 18 games!  As you know, we are big hockey fans so we’re determined to use all the tickets either by sharing with my nephews, friends and kids.  My daughter is like 7 months pregnant and they had bought nose bleed tickets, knowing of course that BT would not let her climb up there and that he’d for sure let her sit in our gold seats.  So off BT and Silvano go in search of the nose bleed seats and Renee and I are quite comfortable in our seats.  Well the boys stumble onto (ya I don’t know how that happens) a private box with waitresses, wine, food, tablecloths…..  The trick I guess is looking like you belong.  They are sitting very comfortably discussing the game as if they are owners (to fit in obvi) with their glasses of wine. Then some guy behind them whispers “That’s Walter Gretzky” WELL!!! That was all they needed.  BT turns around and winks at the guy kinda shushing him like he’s incognito. The waitress (a newbie) gets all flustered and says Mr. Gretzky this isn’t your box, it’s somewhere else BUT it’s OK, the owner isn’t here and I’m sure he wont mind.  WHAT THE FUCK!!!! #1 Walter Gretzky is over 80 years old and #2 BT looks nothing like him.  But Ladies and Gents, the story doesn’t end there.  Boxes are open in front and people are sitting below you.  By then, everyone thinks Mr. Gretzky’s in the house.  Canada scores!  BT gets overly excited and spills his wine on 2 lovely Canadians bellow him who were wearing white Team Canada Jerseys that the Grandmother had hand knitted!!!!!!!  The old gal spend 500 000 hours knitting and BT, Excuse me, Walter, ruins the sweaters with a glass of wine. The couple was excited that Team Canada scored and it probably makes for a good story for them to say that Walter Gretzky spilled wine on them.  I just can’t believe the shenanigans he gets himself into! You’re Welcome!

Hope you enjoyed that one!

 

Other passengers on this journey

Hey gang!  Last time I blogged I mentioned that we’d get to the amazing people I’ve met during my journey and we’ll get to that in a few. First for an update.  Well turns out the problem with my eye is indeed a tumour on my orbital bone that is pushing the on my eyeball (its the size of the eyeball! ewwww!) and there’s a little activity in the cranium so…. last week was radiation to the orbital bone and the skull for 5 days.  No biggie, but turns out my brain is not a fan of getting scrambled so I’m nauseous and unbalanced and still seeing double out of the right eye.  Good times!  Eating is a bit of a challenge but I force food down my neck anyway knowing it’ll help me heal.  Of course my friends and family make sure I eat good stuff!  Good news is that I’m getting better every day and I really think I will be able to resume my projects next week! Can’t wait !  Haven’t seen any signs of hair loss yet!  Yahoo!! I forgot another trick for those of you who are losing your hair and/or growing it out, a satin pillow case!  Less tugging on the hair and skin (I try everything to prevent those nasty wrinkles).

Now for the people I’ve met along the way.  It goes without saying that the medical team that has been a part of my life for the past 9 years are exceptional people.  They are a testament to humanity and kindness.   The way they make sure to treat you as a whole person and not just a disease makes you feel like they really want what is best for you AND your family.  You would think that going for treatment or for an appointment would be depressing and intimidating but everyone from the volunteers to the doctors are positive and upbeat people.  Even in the chemo room, people are talking, laughing and making the best of their situations.  I can’t say enough about the nurses in that room.  I really feel that they are my friends and their openness and kindness make it easy to confide in them, joke with them and just be genuine with them.  We share pictures, stories and great laughs!

Surprisingly enough most people getting treatment are really not negative (some are of course but I feel that these people would be negative about everything).  They are up-beat and, like me, feel confident that the treatment will either work or at least patch them up.  Smiles are usually the order of the day in that place, if not, I try to crack jokes to get people laughing .  Usually works to! Asking for a mani-pedi usually gets a good laugh.  Understandably some have no hope and the looks on their faces are telling of their struggles.  I’ll admit that breaks my heart until I realize, “wait a minute! I’m in that same boat! Wow! Back the truck up!” I wish I could go talk to them but I feel that’s it’s really not my place to do so.  That’s why my visit next week will be to see if I can distribute cards to patients guiding them to my blog.  If I can only help a few I’ll call it a good job!

A couple of weeks ago I met a gentlemen that’s about my age who happens to be a relative of a relative,  who has terminal cancer and he’s the most energetic happy person I think I ever met!  His life story is such a tragic one too.  Physically and sexually abused as a kid, suffered a debilitating boating accident where no one thought he’d make it, more injuries and finally a terminal cancer diagnosis!  He’s sick every single day but according to him “Hey! Life is good!  I have a couple years left and I’m making the most of it!”  He bought a big camper and travels when they can and is basically making the most of his situation.  He always has a smile on his face and bitterness is just not part of his life (even towards his abusers).  He just wants to leave behind positive vibes and good feelings.  He’s a good person, a great husband and an amazing father!  What a great legacy really.  Even though you don’t know him, and I don’t feel that it’s my place to tell you his name, I hope that you will remember his life lessons so that his life’s work will somehow live on.

So many other people have come into my life during this journey that I just can’t, at the moment, think of them all.  All of then with different stories, different backgrounds and different ways of coping.  I like to think that they have helped me to either adopt their ways of thinking or thinking “Hell No!” I’m not going to be that negative Nelly!  Either way, people have an impact on your outlook and it’s up to you to do the cafeteria thing and pick and choose what’s right for you.  Just try to stay on the positive side of the train.  Remember, No Negativity Allowed On The Danielle Train!

Ok that was not humorous at all!  Bummer!  Maybe it’s time for a funny BT story! This is a doozie!  BT and I are fans of Pink! Her energy and music are really inspiring for strong women.  Anyway,  Renee bought me tickets to her concert in Toronto and it was going to be a big girls’ night out with cousins and aunts (8 of us).  But wouldn’t you know it, BT’s feelings were hurt because he wasn’t invited! “But I love PINK too! You’re all being sexist!”  WAAAAAA!!!!!  Dinner and the concert were great despite BT pouting back at Tara’s house.  Next day, Renee and Silvano had tickets to a Leafs game and after an all day pouting session, BT convinced Renee to give him her tickets to the game so that she can meet up with friends in downtown Toronto.

Off the three of them go downtown, Renee to meet friends and the boys at the Air Canada Centre.  Do any of you realize how expensive it is to get roaring drunk at an NHL hockey game?  Well BT found out!  I guess he felt a little guilty about Silvano paying for the tickets so he just kept buying beer.  Not a big deal really until they somehow weasel their way into the ACC Lounge and STEAL two really nice ornaments!  The story does not stop there.  They find out where Renee and her friends are and proceed to drink more beer out of the pitcher no less!  She kicks them out and sends them to another bar to eat something so that she won’t have to carry the two home.  They taxi it back and she has them engaging in a water drinking contest and goes to bed.  I get up the next day and see these awesome trinkets and think “Oh how nice, BT thought of stopping and buying me a little something!”  He gets up and of course remembers nothing!  So we did the logical think and look up pics in his phone.  Pics of them sneaking out with the ornaments AND a picture of BT wearing a white beanie and carrying a Chihuahua!! WHAT THE FUCK! He has no clue!  It would seem that one of the bouncers had the little dog and BT must have asked him to take a pick with his dog and his hat?????  That was a rough day after the night before for BT!  You’d think he’d have learned his lesson, but no!  There are like so many BT stories like this it just makes my life unpredictable and funny.  I know you don’t do these silly over-the-top antics to make us all laugh BT, but come on!!  Great job babe!!

Next time we’ll try to tackle awkward comments people make to try to make you feel good!

 

 

 

 

Staying busy a.k.a. Staying Somewhat Sane

Hello again you fabulous peeps!  I ended my last post promising to share with you some of my and BT’s projects that have kept us busy and sane (well me anyway, the verdict is still out on BT), and we’ll get to that in a bit.  First an update on my condition.

As you know, my right eye has been bothering me with double vision and of course the MRI shows a tumor on my orbital bone that is pushing on my eye.  And here I thought my eyelashes were getting soooo long that they touched my eyeglasses!  My super-awesome friend and neighbour radiologist also found a little activity in the cranium (that 3 other docs missed) so that is getting treated right away.  So bottom line, radiation to both eye sockets and the cranium and a little shot on my hip as well.  I must say that the efficiency of the Cancer Center blows me away.  Got the tests Friday, doc calls Monday, I get the planning done Tuesday and radiation started Wednesday.  They don’t fool around.  The pain is bothersome and the nausea from the wonkey eye drives me nuts!  Can’t really read for any long period of time but I figured out how to get Siri to read my Kindle books to me! Bonus!  That bitch can do anything!  Oh and I’ll loose my hair again it seems. Tabarnac!

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well when you have to do an eye patch be stylish

Now for the projects.  Keeping your mind off your troubles is challenging I know, but with projects that need creativity and problem solving can save your sanity.  My favorite activity of course is designing and sewing but I also got into painting and other crafts.  Sitting around the house also gave me the bug to re-decorate!  I turned my bedroom into my own oasis and I absolutely love it.  It is so relaxing and soothing.  Since I’ve had cancer, we re-decorated the dinning room, kitchen, ensuite bath, master bedroom, outdoor sitting area….. BT being super handy took all winter to build himself an awesome wine cellar that should be on HOUZZ!  All made from refurbished material (most from a church that had been torn down).  He also build a meat room for our son-in-law (yup! you read that correctly “a meat room” for his homemade prosciutto, sausages, cheeses…)  And now he’s working on a fence so that the grandchildren don’t head for the street. Once that is done, he’ll be starting on a wine cellar for them too.  Let me tell you Mr. Busy Body needs to feel useful and these projects help.   Just look at this awesome wine cellar! The door, the marble floor and all the wood is from the old church, the walls and ceiling are from cork flooring that a friend had taken out of his house and the metal rods are from an old theatre that closed down years ago.  Only the lighting and the ventilation system is new (he keeps it at about 14degrees).

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He did all the planning and building himself! I guess he’s not such a goof after all! That room kept his mind going and his creative juices flowing! I’m so proud of him!

AND NOW FOR MY PROJECTS OF WHICH THERE ARE MANY

This owl duvet is my latest finished project.  My little Daniela loves owls so of course Grand-maman had to make her a duvet for her big girl bed.  It took a lot of planning and was quite a challenge but that’s what we need right?

 

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Daniela’s duvet (not in her bedroom here but you get the idea)

A few of my sewing projects

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A car seat cover

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And my little sock animal zoo

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And a few paintings

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You get the idea I think! (notice the paintings are all abstract, not my forte but what the hell right?)  Anything to keep my mind from going to that dark place, I think up new projects.  AND I feel that I’ve left something positive behind.

Enough of my mad talents (for now), next time I’ll write about some of the amazing people I’ve met during my journey.  You’ll enjoy I hope!